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The role of care coordinator for children with complex care needs: a systematic review.
(Ubiquity Press, 2016-05)
Introduction: This systematic review seeks to identify the intended components of the role of care coordinator for children with complex care needs and the factors that determine its composition in practice.
Theory and ...
Family and healthcare professionals' perceptions of a pilot hospice at home programme for children: a qualitative study.
(BMC, 2016-10-28)
Background
Parents commonly report a significant improvement in quality of life following the provision of hospice and supportive care and have identified a need for such a service in the home. The purpose of this study ...
Parents' perspectives of the transition to home when a child has complex technological health care needs.
(Ubiquity Press, 2015-09-29)
Introduction: There is an increasing number of children with complex care needs, however, there is limited evidence of the experience
of families during the process of transitioning to becoming their child’s primary care ...